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2011 Cannonball Charity Ride for Dystrophic Epidermolysis Bullosa Research Australia

From 10-22nd May I will be participating in the Cannonball Charity Ride, a motorcycle rally which will raise funds for the charity DEBRA.

         

DEBRA supports sufferers of Epidermolysis Bullosa (EB) which is a rare disease whereby the skin blisters and peels at the slightest touch. EB children are sometimes called the 'butterfly children'; because their skin is said to be as fragile as a butterfly's wings. Living with EB has been likened to living with third degree burns. It is very painful, and sufferers must be bandaged every day with dressings to protect and medicate their woulnds.

This rally is no ordinary ride around the block. We will be travelling on dirt bikes and it will take us from Bribie Island across Queensland and into Alice Springs. From there the course will wind around to Kings Canyon and then down into South Australia’s Barossa Valley. Approximately 6000 kms in total. Along the way we will be raising money and spreading the word about EB.



It has been a particularly disastrous start to the year for so many people all over Queensland and many parts of Australia with flooding and cyclones affecting almost everybody directly or indirectly in many different ways. Not to forget the problems our neighbours across the Tasman are experiencing. Those who haven’t been affected and even some of those who have are giving generously to various appeals to assist flood and cyclone affected communities.

The flooding and the flow-on economic effects have caused difficulties for quite a few of our fellow entrants who have, for various reasons, had to pull out of this year's fund-raising event. It is for this reason that we ask for great generosity from everyone who can give a donation to this very worthy and much unknown cause.

Every day, every month and every year, the children affected by EB and their families who support them are living through their very own traumatic event. Here, there is no cleanup operation, no 24 hour news coverage, there is no getting on with lives. This issue doesn’t go away. It is with them for life.


For this charity I have agreed to raise $3000.00 but have set myself a goal to raise over $4000.00.

This is where you come in, because I need your help to reach this target. Your donation - no matter how small or large - will help, but as you know the more you give the more benefit will go to these most worthy recipients.

HOW TO DONATE

Donations over $2.00 are fully tax deductible and can be made by cheque or direct deposit. Also any donations of $1000.00 or more will have their name printed onto the official ride shirts and have their details mentioned on the Crane Truck Services website for twelve months.

My reference number for the ride is "G1".  Please ensure you use "G1" and your details as your reference to guarantee your donation goes to the right place and a receipt can be forwarded to you.

Cheque
The easiest way to donate is to simply write out a cheque and send it to:
KJ Promotions & Events
PO Box 625
Booval Q 4304

Make the cheque payable to KJ Promotions & Events.
Please include the reference "G1" on the back of the cheque.
Include your name and postal address on a piece of papaer in the envelope and a Tax Receipt should be sent back to you from KJ Promotions & Events.
Click here to download a form that will make it easy.
 

Bank Transfer
Please download the this form for Direct Debit details.

Chasing Tax Recepts
Please email Katie with your details if you have not received your tax receipt.

(Or phone/sms/txt her on 0402 750 900)

THANKS

This ride will be painful, but hopefully fun for me and the other men and women entering in this event. Our pain will go away. EB sufferers’ pain is with them for life.

They need our help.

Thank You and Best Regards
Gary Mourilyan ‘G1’
Crane Truck Services Pty Ltd


PS: For more information, please take the time to visit the link to DEBRA (http://www.debra.org.au/) and Cannonball Charity Ride (www.cannonballride.com.au) below.

RECOGNITION WALL

Example1 Joe Bloggs ($1.00 pledged ) Says:
Good luck Gary
(www.cranetruckservices.com.au)

Donation Total $0.00

Links providing more information:

Cannonball Charity Ride - www.cannonballride.com.au
DebRA Australia Inc - www.debra.org.au
Dystrophic Epidermolysis Bullosa Research Australia - www.debra.org.au


Gary Before the Cannonball Charity Bike Ride




Will the bike ever be the same




Will Gary ever be the same




All proceeds to Dystrophic Epidermolysis Bullosa Research Australia




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